Lymphoedema: The Hidden Challenge

I had never even heard of this until I had breast cancer. It wasn't until my fingers swelled like a sausage. Move over King Charles I began to think more about what it was and how it affected me.

If you have had your lymph nodes out. There is a high chance you will develop a lymphedema.

So what is it?

It is often characterised by swelling due to the accumulation of lymph fluid. It typically affects the arms or legs but can occur in other areas as well. The compromised lymphatic system struggles to drain fluid effectively, leading to swelling and discomfort.

If having breast cancer wasn't enough- what can you expect?

This isn't designed to frighten you and like all things is a spectrum. 

1. Physical Discomfort: Lymphoedema causes pain, heaviness, and limited mobility. Patients may find it challenging to perform daily tasks or engage in physical activities.
2. Psychological and Emotional Toll: Coping with visible swelling can be emotionally distressing. Patients may feel self-conscious, anxious, or depressed.
3. Functional Limitations: Lymphoedema affects arm movement, making simple actions like lifting, reaching, or dressing difficult.
4. Risk of Infections: Swollen limbs are more susceptible to infections, which can be serious and require medical attention.

 Why Lymphoedema Remains Overlooked:

Several factors contribute to the lack of prominence:

1. Focus on Cancer Treatment: Breast cancer discussions often center around diagnosis, surgery, chemotherapy, and radiation. Lymphoedema, a long-term consequence, receives less attention.
2. Invisible Condition: Unlike visible scars or hair loss, lymphoedema isn’t immediately apparent. Patients may suffer silently, and others may not recognize their struggle.
3. Stigma and Misconceptions: Some misconceptions persist, such as believing that lymphoedema is untreatable or that patients caused it by overusing their affected limb.
4. Healthcare Professionals’ Awareness: Not all healthcare providers are well-informed about lymphoedema management. Early detection and intervention are crucial, but this requires awareness and education.

It's not all doom and gloom:

1. Timely Intervention: Early detection and proper management can prevent or minimize lymphoedema. Awareness campaigns can educate patients and healthcare professionals.
2. Quality of Life: By acknowledging lymphoedema, we can manage symptoms..
3. Advocacy and Research: Increased awareness is driving research funding, leading to better treatments and support services.
4. Reducing Stigma:  If we keep talking about it we can help reduce the stigma.

Let's not forget you can also get a pressure sleeve in lots of really funky colours. It will save you a fortune at the tattoo parlour.